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Your Resource for all Things Relating to Factor V Leiden

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What the AFVLA Does

We want to help answer your questions

  • We want to take away the mystery and help you learn more about Factor V Leiden, what it is, how you inherited it and more.
  • Share with you the latest research and what known risk factors, combined with Factor V Leiden, may “trigger” venous blood clots and what steps you can take to help reduce that risk.
  • Encourage discussion and suggest questions to ask your medical professional if you are diagnosed with Factor V Leiden.
  • Give you the tools to help explain what Factor V Leiden is to your family or friends.
  • Give you information that can help you decide if you or someone in your family or community should be tested for Factor V Leiden.
  • Give you the tools and resources to help you spread the word and inform others about the disorder in your community.
  • Provide you with an easy to use resource in one place so that you can research the disorder as deeply as you would like, from “just the facts” to great depths by reviewing and studying the latest research publications and medical journal articles.
  • Provide you with discussion boards so that you can connect with others who also have or are interested in Factor V Leiden.
  • Keep you informed about how the AFVLA is encouraging research, providing education, and advocating for common sense testing when appropriate to help keep you and your family safe.

Fast Facts - Join the Fight

  • Most people have never heard of Factor V Leiden.
  • A lot of people carry the genetic mutation and a few people develop blood clots that are related to Factor V Leiden.
  • Do you know someone who has suffered a deep vein thrombosis, pulmonary embolism, or other type of venous blood clot? In many cases, those blood clots were caused by issues relating to Factor V Leiden.
  • A large number of people live every day with complications caused by blood clots.
  • Sadly, the Centers for Disease Control (CDC) estimates that 274 people die each day or over 100,000 each year as a result of blood clots.
  • If the person had known they carried the Factor V Leiden gene mutation, in many cases some very simple steps taken beforehand may have saved their life.

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